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Mummies with Fibromyalgia and related conditions in the UK

For those ladies suffering from Fibromyalgia, CFS and all related conditions.

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Advice please!!

Hey, I’m 23 and just been diagnosed with fibromyalgia. I have a 10 month old and I am really struggling with the extreme fatigue. I’m finding harder and harder every day I ache I always have a headache, it’s just tough out here. At the moment even putting my baby in his bed is tear inducing and I feel I put so much on my partner and that weighs heavy on me, even though he is literally an angel with it.

Anyway I would really like to give my boy a sibling one day but I also know this illness could get worse over time. I’m scared that we won’t be able to have another due to my fatigue and pain. So I think for us it’s start trying now or just enjoy our little boy. However I am super worried about what having another will do to my body and I just don’t know where to go. The doctors have been super unhelpful and not told me much about it so I have had to do my own research.

Any advice or opinions would be super appreciated as this is not a decision I thought I’d have to be making at 23 🩵🩵

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Making friends

Fibromyalgia and making friends

Does anyone find that making friends while suffering with fibromyalgia/ other conditions is really hard? You want to have a friendship with people you click with but feel bad when you can’t always turn up because your too exhausted or in too much pain, then feel like a let down or that you can’t be bothered to make an effort? Anybody who suffers with this is the Newport area?

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Sleep & tiredness

Fibromyalgia mama

I’ve been trying to coop with being a new mom. My body has been shutting down more than usual. My hands are cramping. This weather has been hard on me. The fact that I cry in pain and still have to take care of my newborn. I’m just overly tired or I can’t sleep

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Postpartum mental health

Struggling!

I’m not sure if this is the right place, but I’m struggling. I had what looks like another chemical pregnancy while still breastfeeding, and it’s hit me harder than I expected. On top of that I’ve been in a fibro flare for a week, running on no sleep with my little one, and I can feel my mood really slipping.

I’ve been through depression before and I’m scared it might be creeping back in now. I feel like I can’t cry or fall apart because my baby needs me, but inside I’m exhausted and deflated.

Has anyone else gone through something similar — postpartum hormones, breastfeeding, loss, fibro flare — all at once? How did you cope or find support? I’m thinking of reaching out to my GP or HV but don’t even know what to say.

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Early pregnancy symptoms

Fibro or folate?

I’ve been having fibromyalgia symptoms since 5 months pregnant I am now 8 months pp. I was with physio, and they sent me back to my gp saying it could be a chronic illness Got a blood test and they’re saying my folate is low and to take 5mg for 4 months But I really feel like it’s fibro, the fibro fog, inability to move when I flare up, fatigue, extreme pain etc.

Is there any advice anyone can give, is it folate deficiency or is it the doctors trying to just not diagnose with fibro?! Thank you

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