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A supportive community for the women in US who have children with special needs.

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Just tired

Hey everyone. I’m a mom of 4. We are currently homeless living in a hotel. My son has autism and recently started having siezures. His dad and I have missed work due to bringing him to so many appointments. I’m so stressed because now we are short to pay for our room. I have gone to social services and 211 and they were useless. Any advice?

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Baby swimming

Feeling like the worst mom ever

I have two boys who have a rare genetic mutation that causes them to be delayed and have a heart condition. Anyways we were enjoying the pool the other day , my boys love the water and it’s one of the norm things they can really enjoy . Both me and dad were in the pool with them my youngest being 13 months was in his floaty which I thought was safe . And I was talking to dad when I realized my yougest drifted off and as I noticed this I start to go get him and in that moment he went to dunk his head in the water which his floaty made him flip over . Scariest moment of my life , I was able to swim and get him and thankfully he’s ok . But now I’m just reliving this over in my head feeling so guilty I didn’t keep him at my arms length . I’ve done a lot of research and he will never go in this floaty again . And I’ve ordered safest ones . But has anyone dealt with a traumatic situation?

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Disabilities

Help please😩

My son was diagnosed with Autism and he has behavioral problems he loves to scream and run around , he. Recently began to hit and it’s becoming an issue at school. I’m so stressed out especially with the screaming, I have gotten RBTs for him for school but most Of them are new RBT with no experience so it’s of no help…. The teacher complaining daily . I’m not looking for a RBT that has experience and has to be very firm with him . Can anyone recommend any company please help… I’m in Fort Lauderdale area

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DDD and ALTCS Budget Crisis In Arizona

I have been briefly following up with Brandi Coon, Co-founder of Raising Voices Coalition, what is going on. We haven't been able to attend the previous meetings downtown Phoenix, from Tucson, still getting things settled from the move and catching up on specialist appointments, for the kids. Looking for more advocacy and support for my family, in this battle. Been trying to get more certs to do the Paid Parent Program, and just getting the wait until things are more official. Easier said than done. In the middle of these PT, OT, and Speech therapy evaluations for school grade transition, paperwork is due at the end of April and falling onto the uncertainties of having these services available, continuously, for the Summer.

Have no idea if it is just the state of Arizona getting the burnt end of the political stats and mishandling funds of Department of Developmental and Disability (the funds are being withheld right now, by the state, as we speak because they are wanting to do strenuous cuts to these services of already shortages of).

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Autism Awareness Day

Apparently it was Autism Awarness day yesterday. Cool. I didnt know. I dont usually make a big deal about it. My step son who I raised since he was 2 yrs has Autism. How did we find out? I saw the signs and convinced dad (bio mom out of the pic) and got him tested. Yup. Autistic. BUT he is a very capable boy. He is about to be 11 now. Only real issue is his behavior when he gets frustrated or upset. Other than that you probably wouldnt think he was on the spectrum.

Yesterday I questioned why grandma posted like 10 pics of my step son on FB. He said oh for Autism awareness day. Im like uhhh ok..thats cool i guess. Not sure why make it a big deal.

He then ask me why dont I make it a big deal? Is it because hes not THAT autistic? Or is it because im not his bio mom and maybe I would be more "supportive" if our other son we have together had autism.

Comence the arguements. So im not supportive because i dont wear Autism awareness t shirts or post a thousand pics of my step son or a thousand post about autism? But lets forget the IEP meetigs, therapies, phone calls from school, dr visits for meds all to which again i have dont mostly and bio mom could care less..

Im mad..no. im just annoyed. Like am I wrong? Do i need to be actively posting and flooding my life with Autism Awareness crap to show i support this child that isnt mine and have raised as my own?

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