Silent reflux ruining our lives :(

@Tamika yes she has cradle cap too she had baby acne at the start for a few days which only happened when I was baby wearing and her face got hot and sweaty, also she gets a lot of gas and I think her poop are mucousy but it’s hard to tell I have nothing to compare it to ? I asked the IBCLC today and she said they looked fine - but that was only from photos and not IRL - to me they look mucousy 🤷‍♀️

Zoe I'm so sorry, my good friend has been through this and it was a very dark and difficult time for them. I'll ask her what she did but rest assured it you're nearly there, it won't last much longer with or without intervention. 💓 infants friend was the only thing that helped her daughter. She used it religiously. You can also try baby Bowen... look up a video on YouTube. Both my babies slept more soundly after a few gentle releases. The one on the solar plexus would be a good one to try.

Hi Zoe, it is so hard to see your baby in pain and not finding ways to relieve her pain, I know a bit about it.. I really hope she grows out of it quick 🙏 I was using Infacol for my son, which helped for the gas but it turned out that after a while it was one of the sources of his reflux because of the orange aroma which has an acid pH, not great for reflux. So stopping it helped. Feeding him in upright position. Sleeping in an inclinated bed (which you're probably already doing). Everything to reduce gas as much as possible because when too much gas he would constrain and then regurgitate.. I also stopped dairy for the time I'd breastfeed him as he showed allergic symptoms... This has to be looked at by a pediatrician dietician, referred by GP or HV. If ever you're on formula, there are special ones that help with reflux or designed with cow milk allergy in mind. Don't give up, you know when something is not right, you're fighting for your little one, you're an amazing mum!

Tbh I’d look at getting the TT cut, you don’t know the impact it’s having (not truly) or will have in the future. GPs don’t do allergy testing anymore really, they’d rather do trial and error. Tummy time massively helped out reflux & silent reflux. Slings in the day. @cosleepy on Instagram has a guide on safe chest sleeping.

Have you tried eliminating certain allergy common foods from your diet ? If you’re breast feeding that is. You could start with dairy, gluten, peanuts. There are 10 most common food allergies I believe you can google.

This is super hard. We are going through the same thing even down to the tongue tie my LG is nearly 4 months now and I think I've had about 3 hours sleep a night since she was born. It's so hard and barely anyone understands, someone referred to it as a just a laundry problem the other day. They don't understand the sleepless nights and days of never being able to put your baby down it's exhausting. One thing that has helped me is the Facebook groups they are amazing for advice. Babies with reflux and silent reflux and the acid reflux babies support group. They are really helpful for venting and also getting tips from other mums who've been through it and out the other side.

@Natalija if you can ask that would be great thanks and I will also try to find some infants friend

@Sarah I don’t use infacol , I have her on an incline wedge pillow and I’ve asked gp and HV for allergy testing referrals and they won’t it’s making me miserable trying to cut everything from my diet and I don’t even know if it’s that

@Charlotte how do you administer it ? I breastfeed and never have time to pump as I literally can’t put her down :(

@Ellen thanks for understanding it really is exhausting and feels so unfair that no one will listen (Gp / HV etc) I will check out the FB groups now

I ended up holding my baby for about 15-20mins after feeding and then putting him downn on a low pillow (my Doctor suggested this) this helped him sleep without vomiting. The reflux ended after he started sitting up at 5.5 months.

@Zoe totally understand how you feel! This is one of the reasons why I didn’t enjoy the newborn stage as I was constantly having to hold him upright and during the day he used to contact nap

@Fahima I can’t wait until 5 or 6 months :(

@Adrianna I’m a single parent with no help so it’s just ruining my life why don’t doctors do anything I really don’t want to stop breastfeeding have already asked them to allergy test and they won’t how did you get intolerance testing

We went through SR with mt daughter 21 months and now with my son 4 weeks and omeprazole is the into thing that worked. We tried everything - carobel, reflux milk, colic milk, gaviscon , holding upright, sleeping upright, dr browns bottles. You name it, we tried it. And in the end we had no choice but to try the medicine and it changed our lives immediately!

Apparently reflux in newborns can be caused from birth trauma. My baby did have a traumatic birth because it was an emergency forceps delivery, where they literally yanked him out of me to save his life. He had the cord wrapped around his neck twice 😣

@Zoe I went to the GP and my GP did prescribe Gaviscon for him but I didn’t feel comfortable giving it, I can’t remember why now. I did try to combi feed him but Aptamil made him constipated and then I wanted to try Kendamil, however, my doctor advised against it and said to stick to exclusively breastfeeding. I have heard good things about Kendamil (if you are formula feeding then you could maybe try it and see if it settles his stomach)

@Fahima yes I’m the same I was prescribed the gaviscon but don’t want to give it to her

@Aimee thank you , I’m so sorry you went through that it’s awful isn’t it. I know I shouldn’t feel guilty to try the medicines so thanks for this it’s just so hard knowing the right thing to do but I can’t stand to see her suffering

@Adrianna thank you, it’s just destroying our happiness and wellness . Apart from that she used to be a really happy and chilled baby and now she’s not and it just doesn’t feel fair- all that I want is to help her and make her feel better

@Fahima bless you both that does sound traumatic for you both. The only trauma from my birth was a 40& hours labour and crap HCPs , also had an epidural but I’m not sure if that counts or not

@Fahima I’m just breastfeeding although I’m not against combi but I’m afraid she might have CMPI which could be what’s causing it in which case will need a special formula

@Zoe someone said the other day that having a reflux baby is like parenting on hard mode. People with normal newborns just don't get it. Reflux lady Aine Homer is on Instagram and has a book called the the reflux survival guide. I'm reading it at the moment and it's really interesting and helpful. Sending you lots of positive energy!

@Ellen I wish I had time to read a book I am on my own and literally can’t put her down :( I will find the insta tho thanks and I’m sorry you’re experiencing the same

@Zoe I know what you mean! I often read little bits at night when she's sleeping on me but I'm so tired I feel like reading makes it worse. I've started her on probiotics and I'm scheduling a tongue tie appointment privately. I'm also going to go on an elimination diet. I'm so desperate for one of these things to work! 🤞

@Zoe did this get better for you? What worked in the end? Currently going through hell with my 3 month old 😣