Any moms or moms of kids with Ehlers Danlos?
Hi all! I'm 36 and have ehlers danlos syndrome. I suspect that at least 2/4 of my kids has it as well. I'd love to discuss shared experiences!
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@Kara I have hEDS!
I'm 36 and have EDS, at least one of my kids has it as well. :)
42 and I'm in the process of getting Dxed now for hEDS, POTS, MCAS, and potentially something genetic and more rare. My kids will be next up for testing because they have all the signs I did at their age.
I have vEDS! Haven't tested my kids yet but i suspect my son inherited it.