That sounds challenging, but there's no doubt you're doing an amazing job. My brother has additional needs, so I understand how much can go on in the background that other parents may not understand or know about. He is only 13 so I helped my mum a lot when he was growing up. He had issues with the toilet and used pull up pants way longer than a neurotypical child. Some people will just never understand as they've never been experienced it themselves, so try not to listen to their judgement (so difficult I know!) Even with neurotypical kids, parents will always find something to be judgemental about 😬😕 Motherhood can definitely be so lonely, if you ever want someone to chat with/vent to, you can always DM me 🥰
@Jess yes it’s very restricting isn’t it. My son is still breastfeeding as well and has never slept through the night so I’m just physically exhausted all the time. And yes the mental load is intense! You’re right about the guilt too - I know I’m so lucky I can be at home with my son so I feel guilty for being unhappy/lonely sometimes
@Hannah thanks for your lovely message. You’re exactly right that people who haven’t experienced it can never understand what’s involved and what it’s like. All the things that many parents take for granted can be such a huge thing for families with children with additional needs. Simple things like being able to stand in a queue or take your child’s hand and walk with them, these day to day things just aren’t possible for some families or it’s a long road to get there. And yes very true that people will be judgemental regardless towards children who are NT too and they all have their moments especially at this age!
Yes feel like it's harder to go places now she's older. We have the school runs for my eldest which gets us out each day. I've been trying to find some work again as feel like I'm losing me although I love being at home with my girls. Don't think we can win we feel guilty being at home and guilty going to work. It's the mental load too that's a lot to deal with