in November 2023 Babies 🇬🇧

DownSyndrome test

My DownSyndrome test came back as low risk, but numbers wise was 1 in 327, which still seems quite high... My partner did put it in to perspective that's 0.3 in every 100, which with anything else seems very good odds. But all my other scores were 1 in 5000. It's been playing on my mind. No NIPT test was offered as, as far as the NHS say, it's low risk Am I just finding something to worry about

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I received 1 in 790 and had the same thoughts, mainly due to comparison of other results way in the 1000s. We decided to pay for nipt yesterday for a bit of reassurance x

Try not to worry. Mine came back as increased chance for downs (1 in 81), so I was offered NIPT and the results came back as low chance. It’s really unlikely that your baby has downs 💕

Yeah you're right @Nicky I think it's my brain finding the one lil thing to cling worry to.

How have you all got numbers all i got was a letter saying low risk?

It came through on my letter, I kind of wish I just knew it was low. The numbers freak me out

Yeah, they are scary because you automatically compare yourself to everyone else. Initially I was devastated with my first result & then when I thought about it I realized the odds were in my favour. It was nice to have the NIPT results tell me that I was in fact low chance 🙂. If you need extra reassurance, you could call: https://www.arc-uk.org They we’re super helpful in explaining my result to me and I felt alot more confident things would be fine after 🙂 x

You could get a private NIPT test ordered online if you're really worried? Though I think they're a bit dear at £299, so not accessible for everyone. But if I were you, I'm so anxious by default I probably would be right there in your shoes now just the same. My test came back something like 1 in 40,000. It's insane how large the spectrum can be for low-risk? Who decided on that number how? At the same time, a lot of folk get a higher risk than yours and end up with a perfectly healthy baby. Anyway I think your feelings are valid, maybe the private NIPT is something to consider.

@Nicky im really worrying after being told all looks okay on a scan they have told me bloods show 1 in 19 chance i went to have NIPT today. Now anxiously waiting.