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Trisomy 21 Mamas

This is a group to help connect those of us that have been blessed with a child or children with Trisomy 21 (Down Syndrome). We all can see their beauty and the joy they bring to our lives, but we also know how exhausting our days can be and sometimes we need support to get through the hard days and a place to celebrate the moments no one else can truly appreciate or understand.

And I also want to welcome those that may not have one of their own, but know someone that does and would like to learn more from those of us that do.

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Fostering & adoption

Struggling to know what to do

Hello everyone, I've just joined this group after being told we have a 3 in 4 chance of having a baby with DS. We've had the CVS and waiting for the results but I'm struggling with what comes next if the results come back positive. I know we would love and care for our baby no matter, and they would be the most loved and adored child! And the thought of terminating is horrendous, especially looking at all the photos of the gorgeous amazing children in this group ❤️. My concern is what life looks like when they're older. Me and my partner are older ourselves (40 and 50) and we already have a 3 year old, and wouldn't be having any more kids. I'm struggling to decide what's best because of the guilt that I may be sentencing my older daughter to a life of caring for a sibling, from a potentially very young age. I dont really know what I want other than maybe some honest advice from others who have been in a similar situation and made a decision either way? If we had larger family, more kids, we were much younger ourselves. I know this wouldn't be a question but im struggling so much between the guilt of either option and not sure where to go for advice...

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Other

First time mama!

Hi everyone! I am currently 15 weeks pregnant and I have been told that baby is higher risk of Down’s syndrome. I had a CVS done Tuesday and awaiting the results. At first I was so upset but I have got my head around it slightly, does anyone have any tips? Or anything that can help ease me mind about it all

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Pregnancy scans

Thicker skin on neck

Hi yall so I went in for my 20 ultrasound and before this at my 16 week appointment I did genetic testing and testing for everything and it all came back good! But at my 20 week ultrasound my son apparently has thicking of his neck and they say it’s only 1 out of 6 different markers they look for in Down syndrome! Has anyone felt with this and had their child without down syndrome ( like I also told my doctor I DO nOT care if my son does come out with Down syndrome I think I’m just worried and don’t know what to expect!) I will love him no matter what I just don’t know what to expect!!

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Fertility treatments

Going crazy!!

Hi all, I’m posting as a vent really. I had my son by IVF 12 weeks ago. When he was born a Junior Dr thought he may have some soft markers of Down syndrome, the consultant said she wasn’t worried but that we should have the blood test for peace of mind! We are 12 weeks down the line and still no results!!! I feel so anxious about it. I find myself over analysing everything! My main concern if he is diagnosed is the state of services in the UK. I have worked in health and social care for a long time and know that we will have to fight for everything he needs as resources are just so scarce. I have been chasing the results with no success. I’m so obsessed by it it’s making me ill!! … for those in the UK how long did you have to wait? I feel so angry that we are being made to wait for so long. I love my little man so much I just want to make sure I can do the best for him! If you have got to the end of this thanks for reading! X

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Trying for a baby

My lil blessing

Hi everyone!! I didn’t know having a baby with a T21 is a big blessing.

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