Any moms or moms of kids with Ehlers Danlos?
Hi all! I'm 36 and have ehlers danlos syndrome. I suspect that at least 2/4 of my kids has it as well. I'd love to discuss shared experiences!
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I have vEDS! Haven't tested my kids yet but i suspect my son inherited it.
I have hEDS!
I'm 36 and have EDS, at least one of my kids has it as well. :)
42 and I'm in the process of getting Dxed now for hEDS, POTS, MCAS, and potentially something genetic and more rare. My kids will be next up for testing because they have all the signs I did at their age.
I have EDS. Most of my doctors do not know how to treat me!
I know this is a super old post but I likely have hEDS alongside rheumatoid arthritis and it’s made my pregnancy so f*ing exhausting!
I have eds and I think my daughter does also!
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