Hi mamas,
My LO is still comfy and happy in the womb, but we know they'll need surgery after arrival (hopefully closer to 3-6 months old). This might be a long stretch here but... Does anyone have a story with a non-DS AVSD hole repair?
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Bump. Anyone?? ❤️🩹💪

It was a long stretch, very rare diagnosis with an even less likely positive outcome. My baby was found to have other medically complex issues and has gone back to heaven.

My baby has hypoplastic left heart syndrome

She had to have 1 of 3 for her surgeries when she was 5 days old

I’m so so sorry to hear that Jamie. 🥺 Sending you hugs and prayers for your own heart as I’m sure it’s deeply hurting right now.