Is this sounding cerebal palsy or something else?
My daughter is 8 and a half months but was 5 weeks premature and born by emergency c section after placenta abruption. She was OK but then 20 mins later started struggling to breathe and her oxygen dropped to 50 percent, she was rushed to neonatal and had help In the high dependency unit with oxygen and medicine into her lungs and they wouldn't even let us see her until the next morning it was awful. She stayed on that a couple of weeks and had feeding issues. Her feeding issues were the reason she wasn't discharged as she couldn't manage 50 per cent bottle feed, so she had an NG tube, and what she didn't manage went down the tube. She choked and gagged and didn't appear to swallow the milk in a bottle and manage it. She was readmitted just 24 hours after discharge with feeding issues and swallowing. SALT identified a tongue tie and corrected it twice. She still has feeding and swallowing issues but is able to bottle feed now. She can not manage baby food/blended food and does know how to move it around in her mouth or swallow. Once, she swallowed some by accident n become wheezy. She seen a physio for not sitting in the correct position or holiding herself up and they said she has Hypertonia, cueved spine, stiff muscles/limbs both, left leaning c shaped body and then a report come through saying Dysphagia from the salt team also. MRI has been ordered, but the consultant didn't sound overly rushed to do it or worried. She had a cranial scan, and it showed fluid on the brain, but they have reassure its a very small amount and nothing to worry about or to be done for it. She's not able to sit, roll, and even in a supported chair left leans. She was sent a special tomato 1 chair by the physiotherapist. She excessively dribbles like I have never seen before. Her arms and legs, in particular, seem to get stuck like locked and I cannot move them so when changing her clothes or nappy it can be difficult at times as she appears to be stuck an not able to move limbs
Hi there, I just wanted to reach out because a lot of your daughter’s story sounds really familiar to me. I also had a placenta abruption, and my daughter, she spent about five weeks in the NICU. She experienced a lack of oxygen after birth and was later diagnosed with moderate–severe spastic quadriplegic cerebral palsy (CP) at 10 months old. She’s now 3 years old. The hypertonia, feeding and swallowing difficulties, drooling, stiff limbs, and developmental delays you mentioned are all things we saw early on too. We use a Special Tomato chair, a stander, and a walker to support her. While I’m not a doctor, from my experience, everything you’re describing could definitely point toward CP, especially the spastic type. Our MRI helped confirm things, so it’s good they’ve ordered one for your daughter too. Wishing you and your beautiful girl lots of love and strength! If you want to chat ever let me know!