TSH levels

Hi ladies,

My fertility specialist put me on 25mg thyroxine to help my tsh levels which were 3.4 at the time and they helped them go to 1. I have been on it since 2022 and had a child since. I recently tested my levels again and they are now 3.2 despite being on the 25mg dose. Now im not sure why its gone uo and I dont want the GP to suggest to just up my dose to 50mg....where does it end? In a few years time other might have to go uk again and my thyroid would have been fried by then! Any tips?

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I think they will change the dose and have your bloods done again regularly to check your levels are stable. If not they will change again until they are. I had my dose changed 4 times, and they said if they couldn’t stabilise it on the last change that I would have the option of a thyroidectomy or iodine treatment to completely stop the thyroid working. Resulting in life long medication.

Some people refuse all treatment as it’s not the thyroid that’s causing the problem, just a victim of the Graves’ disease/hashimotos disease which was causing the thyroid to act up.

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Thing is i realised I made a mistake and didnt come off the thyroxine after pregnancy I thought I'd have to stay on it and maybe I did want to stay on it incase i gained weight. Before the thyroxine I was gaining so much weight and I wasn't even eating much

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My problems with my thyroid only started after having my kids so I’m not sure about medication while being pregnant. I ironically went to the GP because I was putting on weight for no reason - to be told I had hyperactive thyroid and Graves’ disease which generally makes you lose weight! My specialist then told me that it does make some people gain though. My levels are stable and “in range” now but I’m still throwing it on like it’s a hobby and I’m barely eating a thing now because I’m so depressed about it all and waiting lists for help is, no word of a lie, 8/9 years.

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After 18months in total of being on Carbimazole, my specialist said that he wanted to trial me completely off meds. Apparently this can shock the thyroid into staying in range on its own. I’ve been off meds now since February, feel just as awful as before I was medicated and while medicated. Had my bloods done 4 times and have all been in the “normal” range. From research the normal range is “about right” but not always optimal. And I’m still suffering with the Graves’ disease which caused my thyroid problems. It’s awful! I gained 5st in 18months and the doctors have referred me to weight management through a referral and the waiting list is so long I think I’d be bed bound before getting any help. I was 10.5st before all this happening. My doctor has never told me my results. Just their take on them so I’m not actually sure what they are. I haven’t even had my antibodies tested to see if I’m in remission or not. There’s pages on fb I find helpful. It’s surprising how many people go

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Through the same thing as you - when it feels so lonely!

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I haven't gone to a fertility specialist so I couldn't say but best wishes

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