I had quite a horrible day today. I’m 37 weeks pregnant, I’ve taken part in a study where they give you an MRI to see if you may have difficulties during delivery. They called me today to tell me that they found a brain bleed in my baby. They kept saying how they were so sorry to be breaking this news to me making it sound even scarier.
After a few hours of me absolutely breaking down thinking the worst they called again later to discuss with my partner where they’ve then said it’s just an old tiny bleed and insignificant.
They touched on a likely cause of it like a blood disorder. Now this is where I’m really quite angry but not sure if I’m over reacting or it’s just not common practise… during my first midwife appointment going through medical history I told them that my partner has haemophilia, they put it on my notes but not once have I been offered fetal testing or even explained the risks of an unborn baby having the condition or that certain methods of delivery wouldn’t be possible. A quick google says they offer this testing between 11-20 weeks and it helps identify if they are at risk of things like brain bleeds…
My question is - were you told the risks, were you offered testing and how was this managed with you. I don’t know if this is standard or something that my hospital just missed
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so sorry to hear this my little one had hemophilia i was unaware i was a carrier and didn’t get the diagnosis till he was 4 days old due to him bleeding from a heel prick and not stopping x