Hey, I'm trying to find other mums with visually impaired kids. My 3-year-old recently got diagnosed.
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My wee one has glasses for far sightedness and patches for a squint. She has JIA (arthritis) so also needs screened every three months for uveitis (inflammation of the eye that can lead to permanent damage). Not the same thing as you are dealing with I'm sure, but if you ever need to chat, I understand the worries that come with our wee one's medical needs. Xxx

Thank you for your reply. Would love to chat. Oh bless It doesnt get easy does it. X