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Plagiocephaly/Brachycephaly/Scaphocephaly/Torticollis Awareness and Support

This group is a safe, supportive, and positive place for mommies to learn about Plagiocephaly/Brachycephaly/Scaphocephaly/Torticollis and discuss emotions and experiences with diagnosis and helmet treatment.

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Do I need a helmet to see improvements?

Hi all,

My nearly 4.5 month old baby has torticollis and a flat spot on his preferred side. It’s mild to moderate and he has some facial asymmetry (ear is further forward).

He’s had PT and osteopath treatment from 12 weeks and we’ve been doing everything we can at home to follow the recommended stretches and advice around repositioning.

Recently we had a bit of a break through and he has almost all of his range of motion now. Which is such a relief!!! BUT I’m not sure what to expect in regards to his flat spot.

So my question is - do we need a helmet to fix the flat spot or will it ‘sort itself out’?

Our PT seems to think it will sort itself out (but I think this might be because we’re in the UK and I’ve seen the nhs doesn’t recommend helmets anymore). We would have to go private to get a helmet.

I’ve seen a small improvement with his head shape but I’m really worried about what result we can realistically expect without a helmet. Will he always have one ear further forward?

During the day he spends time on both sides but at night he always sleeps on his flat spot no matter what we do. We follow safe sleep so options are limited of course! I worry this reverses any progress we make in the day.

I’m not against a helmet if this is the only way for his flat spot to even out. But i do feel upset at the thought of him wearing a helmet for a long time - especially if it can be avoided for similar end results.

Please share your experiences because I don’t know what to do for the best!

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Second Doc Band

Has anyone followed through with a second band? I’m feeling sad of how long this process is taking when I feel like his asymmetry is mild. I feel like cranial tech will always advocate for a helmet as the only solution. What are your thoughts? This is what my baby’s head looks like right now. Its definitely not perfect but it is not severe.

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New to this

Hi everyone, twins born 32+6 in May. So 2 months old but adjusted age is 2 weeks. One of my boys needs to get a helmet as it’s flat on his right side. Was just told today at his 2 month appt. I didn’t realize how fast it can happen though since we didn’t notice it at his doctors appt 2 weeks ago. Getting fitted for the helmet on Monday. I feel like such a failure for letting this happen. I have a 2 year old as well and I just feel so split. Doctor told me to roll a blanket up under his back/head so he doesn’t lay on the right side. Any tips to use while we wait to get him fitted for the helmet /tips for when we get the helmet are appreciated.

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Does this look like Plagiocephaly?

What are the recommendations? Baby is 3 months old.

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Premature birth

10 amd a half months

Hi all, my baby girl seems to have plagiocephaly (from googling) and I’ve expressed concerns to friends/family who say it’ll get better as she gets older, but she’s 10.5 months now and this is a pic of what it looks like. It still looks pretty bad to me, but keen to hear opinions from you. Any of your bubbas had it to this extent and it gone without any intervention? TIA!

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