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3 days ago

SMA Althera

My little one is on SMA althera she’s been on this for 2 weeks now and still no improvement. We are still having screaming at every feed. Still constipated, her farts are still really smelly, rash still on her face and skin really dry and flaky on her forehead/eyebrows. We are now in hospital on NG feed due to her refusing to drink all evening yesterday. But still no one is listening to me, told to wait 6-8 weeks for an improvement yet here we are on an NG feed with a drop in centile with her weight since this new milk was prescribed for a suspected CMPA.
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3 days ago

@Caitlin yes, neocate is an amino acid formula. Alfamino is the same except it contains no allergens at all (no soy, dairy, lactose or coconut.) The only way to confirm a milk allergy is a milk trial after x amount of weeks stable without symptoms. This is because it may be gut immarturity and not an actual allergy/intolerance and the logic is that with some time for the gut to heal baby may take normal formula after this time. You'll likely be asked to try the milk challenge in about 6 weeks. Hopefully baby makes a good recovery and settles well with this milk. X

3 days ago

@Lauren the hospital have decided to change her to Neonate after an unsuccessful oral feed of the altherea this morning after she’s had that via her NG over night. She has managed a full feed of neonate without screaming midway during her feed and after her feed. Fingers crossed this is the milk and it fully confirms her milk allergy as this milk has no cows milk protein in whereas althera has some traces broken down.

3 days ago

We were prescribed aptamil pepti, worked well for 5 days, the majority of her symptoms had eased and then back to the same as you describe. After just one week they switched to sma alfamino and the majority of the symptoms (that had returned) disappeared within the first few days. Have you spoken to health visitor? They are usually better placed to be able to get the gp to change the prescription. You should have seen at least some improvement already with the althera if it was going to work. X

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