When should I start documenting
Hi like me my baby has the genetic trait for neurofibermatosis. However unlike me she doesn't have as many birtmarks/spots like me. So my question is when should I start monitoring her spots?
Show your support
If you want to send me a message, i am starting to connect with some clinics and starting a online (via zoom) support group for moms
Hopefully she will be lucky like me and not have many, I was able to get all the larger ones removed which I feel like I just have this empty void now. I would just have her see a neurologist every few years for MRIs to make sure nothing is on the inside, my son has a optic pathway glioma and it trigged puberty at a very young age (like 3)
Trending in our community
Now ! Spots can appear really fast ,so I would do it daily ?