Has anyone else’s baby been diagnosed post birth?

I had my little girl November 2023, she was fine for 12 days and then fell very ill (almost died) that’s when we found out about her multiple heart problems. (There’s more to the story but there was a lot of medical negligence)

Has anyone else been through something similar? How did/are you coping?

She has now had two surgery’s and is due to have another one at the end of this week, she’s also NG tube fed which is a lot on its own let alone everything else.

🤍

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Hey love hope you are okay, luckily ours was caught in pregnancy. But when she was born her diagnosis changed and everything was worser than we thought. She is 5months now and doing amazing!

thanks for your reply! I’m sorry this happened to you too! Did you go any further with the negligence? And how did your son get off of the NG tube? Every time my little girl has a surgery it pushes her back with her oral feeding. She just had her last surgery for a while last month so I’m hoping we can slowly get rid of the tube, we both hate it 🙈

thank you!
Our hospital opened an internal investigation that was supposed to take up to 12 weeks (started in Jan) and it’s still not completed 🤦🏽‍♀️ we have to visit the hospital frequently and it’s just amazingly shit there to the point we want to move to be closer to another hospital lol!

Ah it sounds like he’s done an amazing job so far and you have too! My little girl suffered a stroke following her stent surgery so lost the ability to breastfeed and has an aversion to it as well. She recently started to breastfeed again though with the help of a nipple shield which was amazing and we started to wean which was going so well but she then had her 4th surgery last month and we are kind of back at square one, she’s also got vocal cord palsy from the surgery which doesn’t help but I’m hoping with time we’ll get back to where we were.
NG feeding is so tiring 😅 and draining, since surgery her feeds are running on an hour and 30 mins (was 30 mins prior) and she has sever reflux too 🙈

in our community

Oh my God, oh my God I hope this is not true!!!! I’m kind of scared

I’ve been throwing up and taking a shit all night!!! I just hope that it’s not what I think it is

Small head reported following 20 week scan

Has anyone else had it flagged that their baby is in the bottom 5th percentile for head size?

They said everything was fine whilst we were in the scan and then I got a phone call the next day saying that it’s on the small side and we’re being referred to a paediatric specialist at St George’s. Has anyone else had this and how did things go??

Would you bring 9 week old to a family party of 35+ people?

These are also people who will want to pass the baby around and get a turn to hold him. He just got his 2 month shots two days ago

Exercise 6 weeks after c section

What movement did people start to introduce? I won’t do anything too vigorous until I’ve seen the pelvic physio as I don’t want to compromise anything that may have been extremely weakened through pregnancy! But just wondering what types of classes/movement people started off with?

Induction experience

I just wanted to share my experience with being induced as I wasn’t sure what to expect and thought it may help others.

I opted for the foley balloon which was inserted at 8am Saturday morning, I had to stay in hospital due to hypertension and protein urine however usually you can just go home once this has been done. The insertion of the balloon was not painful, was slightly uncomfortable as there was slight pressure. I actually found having the cervix checked prior to be worse (again not painful at this point just uncomfortable) The balloon had little effect and after having it removed I was still only 1cm. Removal also was pain free and hardly even noticeable.

I then had my first dose of the gel and definitely noticed a difference, I started experiencing period like cramps almost immediately however they were light and manageable. After 6 hours I had another cervix check and although my cervix was soft it was still only 1cm and was only open at the front. I had another dose of the gel and felt an increase in pressure and more intense cramping where I now required pain relief (codeine). After another 6 hours I had another cervix check and I had now dilated to 2-3cm however was still quite difficult to get all the way through so a third gel was recommended which I agreed to.

Almost immediately I noticed the difference and was in considerable pain, I had paracetamol and codeine however the contractions had now become intense and a lot closer together (around 3 minutes apart). After a couple of hours I had my last cervix check and was 4cm and taken down to the Labour ward to have my waters broken and an epidural.

I had been in my room for approx 20minutes when my waters broke by themselves and I was now 10cm and actively pushing…. There was no time for the epidural and my beautiful girl arrived into the world within 2 minutes of pushing.

All in all I would say the cramps/contractions were manageable up until the third gel where it became pretty unbearable however it was for a very short time a gas and air helped take the edge off. The worst part about any of it was actually the later cervix checks where after stimulating the cervix my contractions were at their most painful.

If I had to be induced again I would skip the balloon and opt for the gels immediately as thy had a quicker effect and I would have been out a lot sooner if I had done this to begin with.

One more thing, I’ve never believed when people say “you forget the pain once they’re here” but I can honestly say this is true. It’s been 4 days and I would do it all again in a heartbeat.

Anyone else experiencing this?

Gave birth (vagina) 5 days ago and yesterday morning and this morning getting lot of pain in my right bottom side and lower back