Enlarged tonsils/adenoids
My soon-to-be 3 year old has had recurrent tonsillitis and croup since he was 6 months old. He’s had either or both concurrently 12 times since February. In addition to the frequent infection, he mouth breathes, snores, pauses breathing and sweats during sleep. He cannot cope in hot weather at all and becomes extremely flushed. Conversely, at night he frequently becomes hypothermic, with his temperature dropping as low as 34.5c during deep sleep.
We finally have a ENT appointment for enlarged tonsils/adenoids coming up in a few weeks. Has anyone been through similar and can share what the initial appointment and follow ups have been like? Has anyone had their toddlers tonsils removed? or been suffering similar symptoms?
Thanks in advance X
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My little boy has had his out at 16 months. Best decision we ever made. At the initial appointment they’ll explain what the options are and if they will remove them. Him having them 12 times it definitely means that they will want them out.
This is exactly my daughter! I’ve never heard another parent describe it! I asked for an ENT referral but haven’t heard yet!
Thank you so much for responding. May I ask if your son had similar symptoms? And did they confirm at the first apt if they recommended removal? I’m worried he’s going to be put through all sorts of testing but A&E doc today (needed steroid for croup) said they were so large, hopefully they will be able to make a decision quickly. I just worry they’re going to want to put cameras in his nose/throat and goodness knows what else. I just know he won’t allow anything beyond a peek in his mouth 😮💨 hoping it just doesn’t end in stalemate if he won’t let them poke and prod him.
I’ve really had to push for it. To be fair, between years 1-2 I didn’t go too hard as I was hopeful he would just grow out of it as our GP suggested. But in the last year things have just been getting worse and worse. I have had to take him to the GP (or a&e in the case of croup) with every single episode to create a case. The last bout of tonsilitis was two weeks ago. I phoned the ENT dept who told me he was 18 weeks into the list but still had at least another 18 to go. They advised me to go back to my GP to send further evidence to strengthen his case. I did and just one week later a letter came with an apt for mid Oct. Might be worth calling to see where you are on the waiting list and if anything can be done to speed things up?
Oh wow okay, that’s really reassuring, thank you. I am amazed you had the decision over the phone - gives me hope that we won’t be fighting any cameras down his nose 🤞🏼 So pleased he’s feeling better 🥰 I just want my little boy to live the best life he can!!
Ahh bless him. So happy that you had such a good outcome. Definitely given me hope, thank you so much!
My soon to be 3 years old had exact same thing some months back.
His sat was dropping as low as 60 in his sleep.
Unfortunately the ENT in my city couldn’t do anything as he was too young and we were referred to leicester.
We eventually got it removed.
It was a horrible experience. He alot better now
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