Brain cyst surgery

Our little one is undergoing surgery to treat an arachnoid cyst soon. We’d love to hear from you if you have or have been though a similar situation.

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Hello I have a arachnoid cyst on the right side of my head. Only found out late last year. I’m currently waiting for an appointment in April to see a consultant. I also have a shunt in my head which I’ve had since I was 8months old now 30 xx

i have a shunt too. Not something that many people experience. Were u born with hydrocephalus? Xxx

It definitely isn’t is it. And yes. Was you ? X

Yeah. Was diagnosed at 12weeks. Then had loads of infections and reshunts. Last fitting was 25years ago although had to have 2 within a month. Still going strong tho xxx

Aww bless you I’ve never had a replacement. I had a MRI and CT to confirm my headaches that’s when they found the cyst. Xx

I lease can I ask what treatment they are doing for the cyst? Does your baby have shunt fitted already? Xx

Please “”

Thanks for sharing.
They are going in to drain it and a shunt is the back up plan if the first option fails.
No shunt currently, they’ve just found the cyst.

Aww. I’m glad they are able to drain the cyst. I wish you all the best of luck x

Thanks. Really concerned but hearing about others experiences has helped. Thank you.

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