Does anybody that has mosaic Turner’s syndrome been advised that they must give birth away from home ( 2/12 hrs away) so a heart surgeon is near incase of aortic dissection? Or if you have given birth did you have to do this?
If so, can you contend this? I have no underlying health condition, a perfectly healthy lifestyle and heart and feel it has been massively blown out of proportion, i have also been advised I will need a week in hospital
To recover and don’t feel any of this is needed at all! I also do not want to be so far away from my partner with a new born 🥺
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I don't, but this sounds tough and I know what it's like when hospitals go to town on your medical history. Have you asked any FB groups about this? I find better support in those for specific conditions. Also, can you contact your midwife and let them know your concerns. I found mine would push for answers on my behalf. It's not nice to not have things go to plan. I'm sure your partner could stay, if at least every other night on one of those extending chairs they seem to have on wards. I had to stay longer than expected, it was cr@p.

Thankyou, I will seek advise from midwife as I’m just a bit lost being given so much info

You should at least be comfortable and given all the information with any decisions being made. Best of luck!