Reflux

I’m currently going through this and I’m getting nowhere with it 😫😫 hurts me so much to see my boy in so much pain x

it’s awful isn’t it hun. Has your little boy had the seizure type of things as well? X

yeah it really is!! he’s been having a BRUE event but he goes into full on shaking whilst holding his breath and then screams straight after it’s horrible to watch :( x

oh bless him. See my boy screams for a long period before hand and then stops and not long after has the episodes. The second time it happened he had 10 of them in an hour. Xx

Have you videoed him doing them so you can show the doctors, so that they can be sure it is that!
It sounds absolutely awful for you as a mother and that poor baby! Beautiful by the way.
Have you tried going down the private route for a second opinion xx

yes the second time it happened yes we filmed it. The doctors said they still couldn’t be sure what was happening but think it’s happening due to the pain from the reflux. Thank you. No not thought about going private x

My girl has been very similar and probiotics have helped her hugely with pain and reflux, omeprozole only made her worse, we use gaviscon occasionally still if it seems like it’s bothering her a lot.
She would’ve sometimes done what looked like a massive startle reflex, it only lasted seconds but she would go all stiff and tense and red and then scream, I always thought it was reflux pain bless her. She’s more settled now just using the probiotics and hipp organic formula, oh and trying not to let her go too long with no food, more little and often helps.

I’m going through similar with my 8 week old. Almost every night he’s screaming in pain until he stops breathing and goes purple. He’s so vacant and goes rigid when it’s happening and it’s absolutely terrifying to watch.
I went to the GP and got told it’s ‘first time mum syndrome’ and that he’s absolutely fine and honestly I just don’t even know what to do anymore. It’s definitely reflux but they just don’t want to do anything to help him 😭

thank you. Sorry to hear your little one going through the same. We were using optibac for a couple of months but again nothing really changed while using it. Xx

oh bless you. I feel for you. Just keep pushing and pushing with the gp hun you know your baby best. Demand you want something to give him to try even. I hope something happens for you xx

Hi, I am sorry to hear your story 😔 we are going through exactly the same thing 15 weeks old, bad reflux, awful colics and potential CMA. Doctors are giving they’re opinion but not solutions, we’ve been to A&E few times, Gp every week and private. It’s awful looking at this little humans struggling and we can’t do much to help.
We’ve tried everything and nothing really seems to help in long term.

Hiya, just a tip trying using the forward facing chair when in the pram as acid is worse when lying down. Try keep him upright as when we lay down the acid naturally flows upward but is much more intense with reflux. Did you have acid when you was pregnant? If you did you’ll remember how awful it was to lay down. Hopefully this helps xx

aww bless you hun. It’s just the worst isn’t it. As awful as it sounds im so glad to know I’m not the only one going through it with my little boy. It feels at the time as if you are alone and it’s only yours it’s happening to. I hope things get better for you soon xx

thank you. No I didn’t really when I was pregnant. Just a couple of occasions with heartburn but nothing major. X

Literally going through the same thing right now!! It’s so stressful we’re on aptimal pepti 1 and still no difference. The gps just fob you off and say they’ll grow out of it 😒

aww bless you. yep that’s what we were on. I was so convinced he didn’t have an allergy I took him off. Yea we were told the same thing. I hope things are better for you real soon. Xx

good luck 😊 xx

Our little girl doesn’t have reflux as serious as this though did have a hospital trip like yours when she was 8 weeks. We did Pepti 1, thickener and nothing worked so tried goat milk formula after a call with an osteopath, she’s been a different baby. We use Nannycare. X

I’ve heard about this goats milk. I think that will be our next step is trying that. Thank you xx

I could have written this! Except for the seizures, but my girl does have periods of frequent startling which I’m absolutely convinced is from reflux pain. Although gps don’t believe me and keep telling me ‘some babies are just hard work’ 😳 my girl is now on alfamino CMPA formula and gaviscon. We tried carobel with no effect. She’s so constipated but I rung the gp yesterday and she said gaviscon doesn’t cause constipation but I’m sure it does! She’s also the worse feeder in the world, it takes so long and she hardly wants anything, assuming because she’s uncomfortable! Have you looking into if your little one may have a tongue tie? I felt my girl did and was told by so many people she didn’t. But it turns out she did and had no movement in her tongue at all! Apparently this can cause a lot of colic/reflux symptoms if they have one?xx

aww I really for you hun. It’s so awful isn’t it when you feel your not being listened to. Yes we’ve been checked for tongue tie and he doesn’t have it. We tried that milk also and my little one wouldn’t take it at all. Gaviscon 100% does make them constipated it’s a well known thing. Crazy how one doctor says something different to another. Xx

sorry you’re going through this - it’s so tough isn’t it. Our little girl is 13 weeks and has gradually become a bit more settled. I think she has silent reflux. We’ve had a few night time occasions (first time called 999 as only a week in) where I think she brings milk up internally but it goes into her airways so she struggles to breathe a bit 🥴 hasn’t happened as bad since, apart from a few nights ago, and she manages to clear it eventually just sounds really congested after but it’s v scary. We’ve ended up on HIPP organic comfort milk which we’re sticking with for now. Could I ask what a BRUE event is?

Also what probiotics do you use / when does your little girl have them?

She also has the seizure type thing randomly too - suddenly goes bright red/tense/strains/holds breath. I explained some of this stuff to the health visitor on Friday and the only response was typical ‘she’ll grow out of it’ 🙄 so helpful !

Hi Kayleigh, we are going through exactly the same (minus the seizures) with our 13 week old boy. I feel like the worse parent in the world when my son screams himself to sleep after Omeprazole. Gaviscon made him severely constipated so have taken him off it. He has been on Nutramigen 1 for 7 weeks, but this only came about after multiple gp and A&E visits, often to be told that he is "thriving" whilst screaming the whole ward down in pain. I'm fed up of being told it's colic and "some babies just cry more than others and all you can do is give them a cuddle" or "have you tried going to a baby group?" How will going to a baby group stop my baby screaming in pain everyday?

Unfortunately I cannot offer any magical solutions or advice, but I hope it helps to know that you are not alone in this - sadly. 😘 xxx

thank you. Yes 999 was our first visit up and kept in for 2 nights. Sorry your going through all of this. If you look up a BRUE event it will explain it better than I will lol. Xx

I feel for you hun. Sometimes they are no use at all. Thank you for messaging. It’s nice to know I’m not alone for sure xx

Reflux is a symptom of something. Have you seen if there is a possible tongue tie? Also seizure like symptoms with reflux sounds like sandifer syndrome

yes he’s been checked for tongue tie. Ok I’ll look that up thanks