Waiting for 2
Here to vent!
When my daughter was diagnosed with HIE they told us they most likely wouldn’t do another MRI until she was 2 and let’s just say our first MRI in the NICU wasn’t awesome. My daughter just passed 18 months and that came with lots of specialist appointments and EI follow ups and even though things are going well and overall my daughter is still progressing steadily I am still finding myself holding my breath until 2.
In fact, one of my good friends called me out on it because she and I were talking about a recent appointment and she said something along the lines of ‘That sounds so good, I’m so glad she’s not behind,’ and I said ‘Well we’ll see where we’re at in the summer,’ and she asked why it didn’t seem like I was that excited about the present and the positives and I just kinda brushed it off as a cranky moment, but the truth is I just don’t think I’ll feel comfortable until I have more solid answers. And who even knows if I’ll even get that after she turns 2! Some doctors have told me they might not know what her abilities will be until kindergarten age!
I just want my sweet and super happy baby to be able to be a super happy child and adult too and not be constantly wondering if she will be able to lead the life she deserves. My husband and I aren’t wealthy people and I worry about her future if she isn’t able to take care of herself on her own and we’re too old to!
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I've thought about this so much. We're trying to put some money away for my son in case he needs it as he gets older. We're also in the "wait and see" boat. He's 10 months old and even though he's hitting all his milestones, I can't stop thinking about "moderate learning disabilities". It still troubles me.
I want more children, not just because I simply want them and have always dreamed of being a mom. Also because, I think it would be so good for Royce to have siblings he can rely on as we all start to age. Maybe he'll be fine. Maybe he'll need extra help. I'm not sure. I can only hope as we get older, if for any reason he weren't able to lean on us, he'd have siblings he can ask support for.
There are a million possible scenarios that play out in my head. At the end of the day though, I'd do anything for my siblings regardless of any difficulties they may be going through. I can only hope my own children will be that supportive of each other too.
They can do them at one they tried to push us until she was 2 as “you can see more and it’s more realistic of there diagnosis” I told them to go fk and told them I want one done at a year and wasn’t taking no for an answer
Bearing in mind she hit some of her milestones on time but the rest have dropped significantly behind as she’s 10 and a half months old and has only learned to roll this week and she’s still not sitting and still won’t eat or drink so she’s NGT fed
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