Hi everyone! I hope you’re all doing well!
I’m hoping to hear from people who’ve had a similar experience and recovered.
I have Graves’ disease and I’m currently on PTU. About 3 weeks ago I had a sudden episode of feeling very weak, lightheaded, bloated, and aware of my heart rate. After resting and eating very gently, I slowly felt better and thought I was recovering.
Last Friday, after eating a heavier meal (turkey sandwich + sweet drink), I suddenly flared again and have felt unwell most of the weekend — lightheaded, weak, very gassy/bloated, and sensitive in my stomach. I notice I feel fine when I’m asleep, but when I wake up the symptoms return, especially bloating and that weak/lightheaded feeling.
I’m now sticking to very plain foods (soups, potato, carrot, rice) and resting, but mentally it’s hard not to worry that I’ve gone back to square one.
Has anyone else:
• felt better for weeks and then flared after a food trigger?
• had symptoms that improve during sleep but return on waking?
• experienced gut issues + weakness with Graves’ disease or PTU?
Did it settle again for you?
Any reassurance or shared experiences would really help 🤍
Thank you so much.
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Hi not sure if this will be helpful but have you been tested for coeliac disease? I had similar symptoms and was diagnosed a few years ago. It can go hand in hand with graves in some cases and slightly higher chance of having it if you have Graves’ disease x