Please help I’m struggling (Mums with SEN children or can relate)

Hi ladies firstly I sincerely thank you if you read this all and have some advice so my son is 5 years old and back in January the school SEN reached out to me regarding my child and we both agreed he may be autistic as after speaking to her the things he does made so much sense plus the class teacher noticed and the school sen said she has a autistic child too and he has gotten much more difficult and complicated since then the school and teachers can’t really do anything because he doesn’t have a formal diagnosis or a plan in place if that makes sense apparently so she gave me a referral forum which I filled in and handed it in the office in march it’s June and I haven’t heard anything back I’ve been chasing her up and the office but no response I also left her another email today I even went to the GP but they said let the school handle with the referral as they’ve made a start that don’t seem bothered and specialized in this matter either I just don’t know what to do he’s my only child and I am really worried does anyone know what the next steps are did they have to wait this long? Also my son will be changing schools to a new school by the end of the year since we are moving do I need the other school to refer me again or something? My child bites things objects people anything to be honest and spits today I had to stop him from swallowing a toy car this really broke my heart and shocked me I ordered him some sensory chew necklace hopefully that helps he’s only starting do this recently his other things which has effected him for some time are textures tissue paper if someone was to wipe him with it or is next to him he will scream refuse to eat pulling hair feeling anxiety always on the move hyper active jumping I’ve got him noise canceling headphones he doesn’t seem to like them and he’s starting to seem sad and have trouble sleeping these are just some of the things there are lots more thank you so much if you read all of this I really appreciate it and some help please thank you.

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The wait for community paediatrics for ASD assessments can take a very long time, especially school age.
In Hertfordshire the wait is about 4 years.
What I would say is that all the paediatrician can/will do is diagnose. Everything else comes from your learning and trial & error.
Have a look for local SEND groups, parent support, etc…
Also have a look at your local councils ‘SEND Local Offer’
Book on to courses, parent support groups, training.
He sounds very sensory seeking (as is my son), so things like headphones aren’t always what they need. Look on your local nhs integrated therapies website for children, have a look for something with the occupational therapists or sensory processing team - that will help you to understand what those behaviours are trying to seek.
Lastly… the school ABSOLUTELY can & have to (legally) put things in place, without a diagnosis! Look for ‘Nottingham Ordinarily Available Provision’ - every area works with this now.

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It is the bare minimum that schools and setting should be providing for learners with SEND.
Providing your staying in the same area, you won’t need a re-referral.
You could look up the number for your local community paediatric service though, to just see if your referral has been added to the waiting list yet.

It’s a lot to contend with being a SEND parent. Keep asking questions though - we like to look after each other.
Good luck x

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