rare type of CMPA
My 12 week old baby has been diagnosed with non-lgE CMPA FPIES which essentially means he has a delayed reaction to the cows milk protein in formula but the reaction is severe. He will vomit a couple of hours after a feed then go pale and floppy but it can also trigger shock and sepsis if not managed. We’ve thankfully been able to get him onto Aptamil pepti 1 and that seems to be agreeing with him so far but our paediatrician says it’s very rare. She only sees it once or twice a year and she’s a private paediatrician and the head paediatrician of 2 sister hospitals.
Has anyone else’s little one got this or has anyone else come across this? Feel so lonely in this period of motherhood and so lost.
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Hi there lovely I have no experience of this but I am really sorry you have to go through this x
Ultimately you are doing all the right things for your baby to keep him safe and that is all that matters
Thank you for your kind words. Ultimately I know there’s nothing I can do about it other than be there and support him but I can’t help but blame myself.
Mom guilt has no limits honestly 😓 but these tiny human babies are hard to keep them alive 😭
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rare type of CMPA
My 12 week old baby has been diagnosed with non-lgE CMPA FPIES which essentially means he has a delayed reaction to the cows milk protein in formula but the reaction is severe. He will vomit a couple of hours after a feed then go pale and floppy but it can also trigger shock and sepsis if not managed. We’ve thankfully been able to get him onto Aptamil pepti 1 and that seems to be agreeing with him so far but our paediatrician says it’s very rare. She only sees it once or twice a year and she’s a private paediatrician and the head paediatrician of 2 sister hospitals.
Has anyone else’s little one got this or has anyone else come across this? Feel so lonely in this period of motherhood and so lost.
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