Adenomyosis

Thanks Tina for setting up this group.
I had a laparoscopy in December for a cyst and polyp removal, and suspected endometriosis. After surgery I was told these was no endometriosis but I had quite a bulky uterus and actually had adenomyosis. I have been reading about this as have been TTC, but like you struggling to connect with others with this diagnosis x

Hello. I’ve been trying to conceive for 14 months now and just found out that I have Adenomyosis. Was wondering if anyone else who has had this diagnosis has conceived naturally and gone on to have a healthy baby? I’m starting to panic that I might it be able to get pregnant because of Adenomyosis?

Hi Sarah, we are TTC and I only got my diagnosis recently too. The Gynae and GP said I should start to discuss possible IVF options in another 6 months - I guess they want to see if my recent op has helped. I have read some women have successfully conceived with Adenomyosis - but no harm discussing your options with GP

Hi everyone! So happy to connect with you guys! My mom actually has adenomyosis and I’m one of 4 kids- she never had any miscarriages but the adeno wasn’t diagnosed until later on so not sure if she had it the whole time or developed it later in life. I’ve had 3 losses now and 2 were missed miscarriages with blighted ovum. My RE told me that adenomyosis and it’s connection to fertility isn’t well understood.
I personally am doing 2 more medicated cycles (one more letrozole and then trying injectables) since it takes me a while to get pregnant and then progressing to ivf and using Lupron if the medicated cycles don’t result in a healthy pregnancy. I’m also on progesterone post ovulation which I wasn’t on with the other pregnancies.

It’s so comforting to know there are others out there going through the same thing. When I spoke to the technician who did my HSG she said they would likely move me straight to IVF rather than trying medicated cycles but I will wait and see what the doctor says on the 20th. Think that could be due to my husbands low morphology? I’ve seen lots online about how diet changes can affect things with adenomyosis , but nothing seems that reputable if I’m honest, not a lot of scientific evidence for any of the suggestions..

Thanks for making this group. It will be nice to connect with others about TTC and adenomyosis!

Me and my partner are currently trying, we have been for about 13 months. In December, I finally fell pregnant and had a very early miscarriage. I'm sure this is down to my adenomyosis. I am waiting to be referred to the fertility clinic, so fingers crossed 🤞