I've been a mess today as I've had some bad news. I saw my consultant and he said "We've been liaising with Oxford regarding your results. You've got a rare blood condition that affects 1 in 100,000 so you have to be put under because if that needle goes in your back you will bleed into your spinal cord and will end up a paraplegic" then he said "you are at high risk of hemoraging" and started talking me through how they're going to re pump my blood through a machine back into my body. They said if I wasn't admitted when I was throwing up blood before Xmas they would never of done the tests to find out and basically I would of been left paralysed. I'm just in complete shock. I feel so sad that such a precious moments been taken away from me. I'm petrified of not waking up š Has anyone else been through the same? I feel like I've let my son down and I am heartbroken that I won't be seeing him born.
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Praying for you love šš¼ this is hard news and Iām so sorry you are going through this ā„ļø

@Leah thank you. I just can't accept it. It's hard knowing I won't see my first and only baby being born but not being there for him until I wake up is even harder š xx

So scary! So amazing they found the issue before you went into labor though and now they can take the proper measures to keep you and baby safeā¤ļø
Honestly you wont be missing too muchš
i felt so useless during my csection it was like i wasnt even there. Hopefully they would only need to use a very light anesthesia and you would wake up very shortly after.ā¤ļø the nurses will take photos!

I was awake in my section but I didnāt hold my baby the entire time. I haemorrhaged so it took them an hour to close me up and my husband had her the entire time. I didnāt hold her properly until we were in recovery, exactly an hour after she was born.
You will likely wake pretty quickly following your anaesthetic and they will have baby there ready for you straight away.
I also had the same machine where they were able to collect my own blood and able to transfuse that back to me.

Do you mind me asking what the blood condition is?
I assume you will be put on bypass when you say a machine that circulates your blood?
I just want to say Iām sorry youāll be missing the first moments of your babies life, and I understand how emotional that must be. Of course, itās better than the alternative of becoming paralyzed or worse, but it does really suck. Iām so sorry. Youāll get through it, but your feelings are justified for sure

@Rachelle definitely and for that I am thankful. I really do hope so as I don't want to be out of it for too long xx

@Elizabeth I have Factor 11 deficiency. Yes that's right, it sounds so scary and is alot for me to process in such a short period of time but also I'm glad it won't be hanging over me for much longer. I just feel so heart broken and guilty. They did say they can lay him with me prior to being woken up so that's some comfort atleast. I'm just scared incase something goes wrong and I don't wake up xx

@Alana it's a comfort to know you've been through a simular experience. When he told me about that machine it really put the frighteners on me. How did you feel afterwards? I do hope I come round quickly. It sounds stupid but I'm scared my baby will think I've left him or he won't bond with me as well. I wanted to breast feed but they said I will likely feel too unwell to do so that day and the midwife will need to give him his first feed. Another special moment I've lost š¢ xx

My c-section was very traumatic and I lost a lot of blood. I was shaking uncontrollably the whole time, I felt like I was going to be sick and/or pass out several times and the procedure took a lot longer than anticipated. They had to use forceps to get the baby out and were pushing hard on my chest to get him out. It was awful! They nearly put me under at the time, which was really scary and upsetting. It also took them over an hour to sew me up. Apart from the one bit where they brought my son over to me so that I could see him, I'd actually rather have been under general anaesthetic for it and not know or have experienced any of it. It's not even like you can hold your baby while you're in theatre. The good thing about a general is, you just close your eyes and when you open them it feels like no time has passed. Your baby will just be there!
Blood salvage is a brilliant thing and I had it. It means that you don't have to have anybody else's blood- truly do not lose any sleep about that part.

the machine is absolutely fine and I wasnāt even aware of it, expect for the fact they told me about it I wouldnāt have known.
Itās amazingly clever that they can collect and reuse your own blood. It doesnāt count as a transition as such then.
I felt absolutely fine and never would have known Iād haemorrhaged if it wasnāt for them telling me.
Your baby wonāt have a clue and will be absolutely fine. They have no idea how youāll feel so itās too premature to say you worn be able to breast feed. Babies donāt need a feed immediately. I tried to breastfeed in recovery but she couldnāt match. It was until a couple of hours later that I hand expressed colostrum and the midwife fed her that via a syringe. Try not to get too bogged down with the details of who fed first. In the grand scheme of things, it really doesnāt matter.
If baby needs a bottle feed thereās no reason you or babies dad (if in the picture) canāt do it.
Advocate for yourself and ask.

Thatās definitely a lot to go through, but thatās extremely lucky they caught it before you went to give birth ā¤ļø Sending lots of love and positive thoughts your way, mama!

Sections can complicate breastfeeding. Itās not always the case and some manage perfectly fine. But just be aware that it can make it more difficult at times. Once youāre aware of that youāll be able to look into ways to get around those barriers. Request a lactation support worker immediately (if your hospital has them). Hand express and syringe feed until your latch is perfected. If you donāt want a bottle, tell them no. Unless youāre completely out of it after your section, thereās no reason they need to jump for a bottle immediately.
I didnāt give my daughter a bottle until until she was a week old. I had expressed then pumped a syringe fed her initially. Then gave breastmilk in a bottle while we continued to work on a latch.

I had to get a Un plan c section and got knocked out because I felt them inside me,
I actually haemorrhage and passed a huge clot, i didnāt get to see or hear my daughter cry, my girlfriend did
I didnāt wake up for over 4 hrs after and I was so shaky from not eating or drinking for how long, I didnāt trust myself to hold her
I felt like I failed by not giving a natural birth that I didnāt even get a real chance because I never dilated more then 2 cm in 11 hrs on the drip,
I felt like I never even gave birth I struggle with that for awhile tbh, I hated how I looked or if the scare would look like and I felt guilty because itās how my daughter came into the world but the moment I saw her for the first time and having her now and all her smiles and bubbles she blows watching her grow makes all the bad sad moments go away, I had one of the worst c section experiences my moms seen and sheās a nurse I hate my birth but i am happy it brought me my health mini me and I wouldnāt change It

Hey love , youāre definitely in my prayers hun Jesus always has a solution to things like this. My c section was going left I prayed because I was scared & God really answered my prayer.
I work in maternity services and one thing Iāll say is we do the best we can to preserve patients and give them the best care. Especially in theatre theyāll be at least 2 consultants in the room during the procedure , an Anaesthetist will put you under safely , a theatre member will be monitoring your breathing (oxygen levels and blood pressure every 1-2 minutes. Your midwife will also be in the room and will take baby after their born and check vitals. A baby doctor may also be present to make sure baby is good and stable.
Your birth partner will be notified when youāve delivered and baby will be taken to birth partner in a carry cot by your midwife and a name band will be placed on your baby while youāre being prepped for the recovery room. ā¤ļøā¤ļø
Everything will be fine mama youāve got this.

This must be really difficult information to process! but letting you know I ended up having an emergency c-section with my first and I opted to be put to sleep because I have a fear of the epidural anyway I think they decided to put me to sleep due to other reasons all I can say is it is strange as youāre unaware and you donāt get to see your baby being born, however I donāt think youāre actually asleep for that long and you can wake up from the anaesthetic quicker than you think itās not the most best experience but itās whatās safe for you & your baby, please try not to worry too much I know itās not the type of birth you want ( neither was mine ) but once you wake up you will have your precious baby not to mention hopefully you will be okay too and there will be no further complications with or during the procedure šš¼ you got this šŖš½ā¤ļø

I trained myself to find special little positives in all the negatives and I use the small positives to give me the biggest hopes so I pray I can help give you some light
throwing up blood is scary!!!!! im sad you went thru that but in a twisted weird way, like you said - had that never happened, this would have never been found out and that to me is a HUGE blessing in disguise to me. like God revealed that rare genetic disorder in the most random way, i think its a sign that everything will be just okay! he allowed you to be able to discover that so that after ur csection would be okay!š„ŗ I really need you to believe that as well - life works in the funniest ways and usually the funniest scenarios work out in our favorš„ŗā„ļø good luck mama! everything will be okay.

Your bound to be upset it's like a double whammy. This little bubs has potentially saved u from something massive down the line though to. Sending the biggest hugs. I may have to have a general due to spinal issues and it's def a worry but I also know they are super equipped and had no bad outcomes at my hosp from it. Give yourself some time though hun this is a big shock xxx

Hi I had a elective in 2022 and the needle in my back didnāt work, 5 times! I could still feel a large patch on my stomach. So I was put to sleep. I didnāt have time to think about it but it was so straight forward and Iām having another section this month.
I was only asleep a short time and they bought me and then woke up with baby and me completely fine.
You have not let your son down your doing what you need to get him here safely š¤
Stay strong and positive, docs are doing what they need for you š¤

Hearing all this is scary I bet but at least you know what you will know the steps of what going to happen. Having a c-section and being awake isn't much different than being asleep had them both done. And I've done dialysis for a year so the machine filtering your blood I've done as well. Just think of the positive side that you will hold your l.o. soon and the fact you got to find all this out beforehand. There's a story of a mom in the USA who ended up a paraplegic & they didn't know why.

I can kind of relate. I have a condition in every pregnancy and my blood basically turns into water! Platelets drop way down the closer I get to a due date and my blood will not clot. In my 2nd pregnancy it was so bad that I was not alloted to get an epidural due to a bleed on my spine and getting paralysed š it was a bit odd to wake up to a baby next to me but I was glad everything was okay and I was able to walk afterwards. Things don't always go how we want them but try not to worry ahead. Staying positive is a key and you'll have that baby in your arms soon š„° be happy they found out ahead and concentrate on that!

I had an emergency cat 1 cesarean and was put to sleep with my first child. Happy to answer any questions you might have. I found it hard to come to terms with but I think this was mostly because it was so unexpected I didnāt even know it was a thing! You have some time to prepare yourself and do some research etc x

I'm sorry to hear this š¢ I had an emergency c section and also a general anesthesia. I can relate to many emotions you are feeling. The time to process this I hope helps rather than it being sprung apon you? I couldn't find anyone else who could relate, but talking helps, so I encourage that š„°

At least theyāre taking all the necessary precautions to keep you and baby safe, like you said if they hadnāt have found out prior to labour it couldāve been a whole tragedy for the whole family, count your lucky stars thereās a solution š¤