Hi everyone, my little Violet has just turned 2 and has a 5-6mm atrial septal defect (9mm at birth) and a VSD of 1mm. She is currently seen under great ormond street hospital in London and we have been told it’s watch and wait as to if and when intervention is needed. I’m very aware that we are very fortunate to have gotten this far and intervention is not likely to happen until she is a few years older yet. I was just wondering if there was anyone whose little one was or is in a similar position and how they deal with the anxiety of it all. I’m constantly watching out for any sucking in breaking and keeping an eye on her weight etc. would be great to connect with other heart mamas😊 xx
Read more on PeanutThe views expressed in community are solely the opinions of participants, and do not reflect those of Peanut.
Learn more about our guidelines.
I was a mess and needed therapy. My baby was 8 days old when he had first surgery and then just after his first birthday he had his second surgery. We r awaiting an appointment at Birmingham children's hospital in September to decide if he needs a third surgery. It's hard going ngl. I had to leave older son with family as I'm a single mum.

As an ASD warrior myself, sending you all of the love & prayers! 🩷🩷🩷 She’s got this & so do you!
1
37
34
8

1
14
9

2
20