UK Xonvea Treatment for HG at Prime Minister’s Questions this week

For context I was initially given Xonvea in the beginning which only lasted two weeks, after that I was denied it and the GP wouldn’t re prescribe, so I’ve suffered through pregnancy sickness for months 😢 the other medication didn’t work and the GPs didn’t seem to care, there attitude is this is just how pregnancy is…

I'm on it now but it have to take extra antisickness meds on top. My consultant said its extremely expensive so they don't like to prescribe it if they don't have too. They will try different routes before offering it out.

I have been on it for over a month now and it has been the only effective remedy so far at stopping the vomiting. I only now vomit a handful of times a week as opposed 10 times a day! But it’s not without its side effects. My body is completely sedated in the mornings that I need someone to help me move. Has anyone else experienced that on Xonvea? I only take 2 at night.

are you still nauseous on it? I find the nausea much worse ran the vomit…

I had a similar experience. GP gave me a one weeks prescription then I was denied access new prescription for Xonvea as my ICB had deemed it too expensive, and all gps at my practice were told categorically not to prescribe it to me. I even had one doctor hang up on me on the phone as I was distraught and crying from how unwell I felt. I put in an official complaint about that gp and the fact they prescribed it to me once and not again (despite me telling them it was the only thing that helped). About a month or two after this I’d got a call from my gp saying they have reversed their decision and I’m allowed to have the prescription, but only me and no other women in my practice or in the ICB area. It’s absolutely disgusting and a complete lottery who gets this, frankly, lifesaving medicine. My hospital can’t even prescribe it to patients either despite having a hyperemisis suite at the EPU.

The ‘expensive’ argument I think is total BS. It’s an anti-histamine and vitamin b7 how hard can it be to make?! Also it’s not like women will be on it for years. It’s a maximum eight/nine month prescription for one person at a time.
I’m super glad this is being discussed now

I’m also shocked to hear expense being the argument- maybe because the brand is hijacking the licensing and cost, because in Australia we don’t even have Xonvea- our doctors tell us to purchase Doxylamine sleeping pills (the antihistamine) which are $10 at the chemist and to take them with low-dose B6. We can literally go buy 2 weeks worth OTC for $30. I fail to see why they can’t make those simple ingredients more accessible

I had a search for pure doxylamine brands in the UK, but it looks like you can’t get it without additives like paracetamol and codeine 😢

nothing (in my experience and many others’ at least) stops the nausea sadly 😞 but it helps a bit because you’re able to eat and drink. And stopping the vomiting is so important to stop the dehydration and weight loss, so it’s a great medication, but not a cure yet.

It’s absolute madness in the uk isn’t it. I’ve seen on peanut some Australian women saying they get the ingredients themselves and make up the amounts, and I also tried to search for them in the uk to make up 10mg of each, but yeah like Robyn couldn’t find anything available. I’m thinking of writing to my MP about it as now seems to be a good time politically. I also wonder if PSS or any uk based service is collating all our experiences as evidence?