Parsonage Turner Syndrome

Hi ladies. I am a mother to a 9 month old who is having cleft palate surgery and ear tubes placed next week but I’ve also been dealing with extreme pain in my shoulder and ribs for about a month. I was originally diagnosed with pericarditis and linear plantar collapsed lungs. My pain in my shoulder continued and got worse and i was just diagnosed yesterday with parsonage turner syndrome. I’ve already lost some strength in my right arm and was informed today by my neurologist that I’m still in stage 1 and by the time i make it to stage 2, i will lose almost all function in my arm and it will take some years to regain full strength/function. I am a single mother and I’m trying to see if anyone else has dealt with this or has any advice.

in our community

Sleeping bag

8 week old in sleeping bag for first time as big enough! Do you feed your child in the night whilst in the sleeping bag or taken them out, feed then transfer back to sleeping bag before putting down?

Rant/WWYD

My sister (youngest, 24) has two kids, 4 & 1, and i (oldest, 30) just have my one who’s 6mo old right now, so i ask her for advice or call her to vent about things sometimes. Well im tired of her turning around and telling my other family members that I’m “losing my sh*t.” Literally have not lost my sh*t nor have i ever freaked out to her about my baby, i just call her to talk and tell her what stage my baby is in or talk through how im feeling, but she chooses to tell people that im like a complete nutcase or something which worries me that my family is going to start being judgmental about me as a mother or looking at me funny like I’m some fragile ticking time bomb.

What would you do in this situation? I’m already pretty much decided that I’ll stop telling her anything about my struggles, but I’m almost at the point where i feel like it should be confronted because she, of all people, should understand what I’m going through.

Not drinking

I’m going crazy. Baby born at 2.26kg. Slow to put on weight. This last week hasn’t put on any. Been trying to feed him at night and he’s not interested at all. Fast asleep. During day he will have 5 minute gulps and that’s it. He don’t cry for milk. I’ve got to keep offering to him. I try to offer it every hour but I don’t know what I’m doing. HV said nutrition comes after 5 minutes so I should pump first and then give him. I find it so hard. I tried to pump one boob nothing came. The other abit came. Tried giving him express he’s not interested in that too. Sometimes he will go for a longer a feed but not long at all. He’s 4 months and is currently 5.46kg. I have no family or friend support here and wish I had a cook, cleaner and nanny to help with everything so I can concentrate on the little one. I don’t know what’s wrong with him but I’m loosing it. It doesn’t help that my also stressed generally about my relationship and life circumstances. Any advice that will work. Any comfort you can give. I’m fed up. Is this regression - not feeding. He’s fast fast asleep. I’ve been trying to push the nipple in but that mouth is closed shut. I took some clothes off. Changed his nappy but he’s still asleep. Please help

Leaky nappy help

What nappies are you using to stop leaks?? We use pampers ultra dry size 5, and for the past few nights he has lashed through and we’ve had to completely change him during the night. Last night he leashed through twice!! He sleeps on his front and stays leaks through at the top of his leg where the tabs connect. Didn’t know whether to size up, he has a bit of a belly on him but he’s smack in middle of weight guidance so shouldn’t need too

My little one is struggling with sleep

Hey! I'm in need of some advice please girls! My little boy is 20 months turns 21 months in 2 half weeks. He use to sleep through the night now he is waking up every single night in the early morning, I've had to transition him to a toodler bed as he kept climbing out his cot. Just need some advice on what I can do to help him get back in to a sleep pattern?

5.30am wakeups 😫😴

My 15 week old has started waking up about 5.30am and is really hard to settle back down - it’s like he thinks it’s time to wake up for the day. He used to go to bed at 9pm and was up at 8am but now he goes to bed between 7.30-8pm as he’s knackered by then but waking up at 5.30am😴. Any advice to get him to sleep a little longer in the morning?! Even an extra hour would be lovely 🤣