Hey all, we just had a private gender scan which revealed spina bifida on our baby, it was so scary as the staff didn’t know how to act. I’m now just waiting and waiting for my useless hospital to get someone in to confirm this and discuss further (we are in limbo, they won’t let us use another local hospital)
We are scared stiff and totally unaware about what the future holds… is there any advice for us/ any other uk sb mums who would like to connect?
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I have Spina bifida. I'm in USA

Would recommend you join the Spina Bifida Parenting Village group on Facebook. They were a godsend when we got our daughter’s diagnosis. Sending big love!