Suspected autism and tongue tie?

My Aug 22 baby had tongue tie. I've not seen anything that makes me think he definitely has anything. He's not overly great speech wise... (Tongue tie was snipped.)

One of my other kids, I said from somewhere between 1-2yrs I was certain they had ADHD or Autism. It's taken me until now for someone to finally take me seriously... No tongue tie.

It's a long road. I pushed and pushed for years and got nowhere, finally gave up and bam all of a sudden the school were concerned and I've had other professionals say my child lacks focus and is too hyperactive. Still not got a diagnosis as it can take years to get one but the ball is finally rolling.

What makes you suspect Autism? x

@Billie thanks for your reply. I like to do a lot of research especially around my kids and the rise in autism. I read a report that 91% of children with autism have an issue with their mthfr gene which is also linked to tongue tie so wondered if there was any correlation with those in others.

Both my children were tongue tied and doing ok but just wondered if I need to look out for anything and what to look for really.

Oh wow, I've never heard or read that 😅 I'm rather intrigued now...

Honestly it varies per age, it can show in a variety of ways.

Could be they only run in one direction, only eat beige food, won't eat 'broken' food, won't eat a particular texture, seems too obsessed with a certain topic (in my house it appears to be dinosaurs lol), doesn't sleep, struggles with routine changes, easily gets worked up or upset over said changes... Etc. xx

@Billie I'm going down a rabbit hole a little bit and the more I read the more annoyed I am getting as I've read there is a link with tongue tie and pregnancy vitamins we are all advised to take by our midwives but they have folate/folic acid that people with mthfr gene issues don't digest well and that could also have a link to tongue tie. ( although I know they are advised as help to prevent spina bifida).

All coulds and maybes but I just worry as tongue tie can have other issues such as high palette, sleep issues, breathing issues, increased risk of tonsillitis etc

Seems like autism can manifest in so many ways. Must be difficult to diagnose.

I am just worried I guess. X

It's so so easy to fall into the rabbit hole 😅 my advice is avoid anything that's not .org .gov or .NHS 😅

Are your children boys or girls? Girls can mask it better which can make it harder to diagnose...

It's hard to say with such young kids, the older they are the easier it is... xx

@Billie I know what you mean. I just find it odd when they say they don't know what causes some of these things as there must be a reason.

I have a daughter and a son. My daughter is the oldest.

The stresses of being a parent 🙃 x

My little boy was tongue tied and is on the ASD pathway. I think there’s more talk around “adhd behaviours” with a tongue tie as it prevents proper quality sleep and can subsequently impact on behaviour. Interesting though, I’ve been obsessed with tongue tie and function ever since my little boy was born to try to advocate for him

My little girl was tongue tied & I was having the conversation the other night with my partner about signs of autism.

@Jazmin I have too as no one else in either family was tongue tied so been trying to work what causes it and they (being the scientist) must have an idea it can't just happen, there must be some reason/cause. As I said above from what I've read so far it would appear to be connected to the mthfr gene.

Yes definitely can impact sleep, again from what I've read it can lead to increased episodes of tonsillitis due to poor jaw alignment, high palette and most critically mouth breathing and sleeping with mouth open so bacteria isn't filtered by the nose as it should and hits the tonsils. If the tonsils are removed this can then lead to gut issues as the tonsils aren't their to filter additional bacteria before it gets to the stomach.

Did you use pregnancy multi vitamins when pregnant?

@Emma this is interesting and can't be a coincidence. I'm no medic so trying to research from reputable sources and understand it in layman's language, but there seems to be connections.

The mthfr mutation gene is inherited from both parents and affects the absorption of folate which can cause a Vitamin deficiency which can increase the risk of cardiovascular and nervous system disorders.

It can affect the bodies ability to detox from toxins (in the air, food etc).

I'm learning so much.

I don’t think my son was tongue tied however we are getting him looked at an autism assessment he has quite a few signs and developmental delays

I’m curious also what has lead you to Autism. I’ve got my son with traits (I work with students with asd from reception to y2) and pushing an assessment but I keep. Keep being told to give another “6 months” with his hearing aids.

My son is under a paediatrician about suspected autism, and he had the littlest tongue tie but never never needed anything cut and never had any issues with feeding/eating